Variety of topics and flexible format
Every month brings the group together to share experiences around a topic of interest. There is still time for members to suggest a topic for July. Each call also includes open time where we simply share our stories and how our journey is unfolding, month by month.
In previous sessions we’ve talked about recovery from cancer, hormone treatment, cock rings, relationship issues, incontinence and urine control, the roles of both prescription and other drugs in our treatment and recovery, diet and fitness, how our sexuality and/or sensuality has adapted to the new realities of our bodies, and emotional health and wellbeing. We recently explored what happens when prostate cancer continues or returns some time after initial treatment and it brought forth very big hearts and valuable insights. Our May session was about who we tell about our prostate cancer and side effects – and what we tell, how and why. And in June we explored how physical self love – masturbation – is a normal part of rediscovering our new bodies and supporting healthy recovery and relationship.
Conversations are open to anybody who is affected, including male and female partners. Everybody must abide by our rules about respect, diversity and advice. These circles are completely anonymous, and you can choose whether or not to show your face at all.
Why I am convening and curating these conversations
Prostate cancer and erectile dysfunction (separately or together) are beasts. All those affected need support, and we have to adapt to all kinds of changes. Things don’t always go the way we want them to.
Here’s an opportunity to talk openly and be heard. Members of the group are finding that real-time live conversation generates a wisdom that goes beyond what each individual brings. It also helps us break our sense of isolation.
I am a prostate cancer survivor and I have erectile dysfunction (ED)*. My cancer treatment has gone mercifully well, and ED has been a bigger challenge. I have tried a lot of things to support recovery and I am seeing signs of life down there.
This group is about frank talk amongst survivors and their partners. It doesn’t replace medical care and attention. I am not a medical professional but rather a fellow survivor and facilitator.
What it isn’t
This is not a source of medical advice until and unless we invite experts for that specific purpose. And while you might get support from the group, none of us is here to give or get professional counselling.
This is not a helpline. We only meet about once a month and you may need urgent support. For urgent help, please contact your medical team, and/or your local Prostate Cancer Foundation. I’m also building a list of support groups in the Resources section.
How it works
We meet on Zoom. There is no charge to participate. Nobody has to show their video and you can use just your first name or even a pseudonym. This is a developing initiative and we are figuring out what works together.
You don’t have to speak but you are expected to be fully present for the whole call. To join the group, please complete and submit the form below including a brief note on your connection with prostate cancer and/or men’s sexual health.